How can we best design and deliver pulmonary rehabilitation education: Findings from preliminary Public and Patient Involved and Engagement workshop “Working together to improve PR education” facilitated by Pulmonary Rehabilitation Education Consortium (P

Introduction: Pulmonary Rehabilitation (PR) is currently the gold standard for delivery of exercise and education for people with chronic respiratory conditions. There are clear standards for the delivery of the exercise component. However, guidance around the content, delivery and underpinning pedagogy of the educational component is not currently addressed leading to disparity in PR programmes globally. The aim is to develop an equitable, patient centred PR education model, accessible and co-produced by people with chronic respiratory conditions. This is a report of the initial PPIE workshop. Method: Eight individuals with chronic respiratory conditions from community groups across the Northeast region of the UK participated in a two-hour PPIE event facilitated by PREC. The following questions were discussed in small groups: • What do you need to know to help you with your respiratory illness? • How should teaching and listening work? • How do you like to be given information about your health? Transcripts and source data were thematically analysed by three members of PREC. Results: The four men and four women who attended represented a range chronic respiratory conditions, age and ethnicity (of note, one individual required an interpreter), with diversity in the education they had experienced. Participants described what mattered to them, in four themes: • Education is enhanced and embedded through peer support • Education needs to be adapted and offered to cater for all learning preferences. • Education needs to include time for learning. • Health care professionals delivering the education need to tailor and personalise the education and information with an understanding that people have multiple conditions. Discussion: This preliminary work explores how and what education is required for people with chronic respiratory conditions. Further research is required to address these themes, and to guide the development of the content and pedagogy of PR education.